profile

Aicardi Goutieres Syndrome Advocacy Association @agsadvocacy

🌎
Advocacy for amazing families living with AGS.
profile
agsadvocacy
The Rare Advocates Podcast

Welcome to a patient worthy, rare disease podcast for all. We are the rare disease advocates, part of the Aicardi-Goutieres Syndrome Advocacy Association (AGSAA).

We'll regularly invite families and experts for short conversations about topics relevant to the AGS community.