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Aicardi Goutieres Syndrome Advocacy Association @agsadvocacy
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Advocacy for amazing families living with AGS.
Helpful links to learn about AGS
What is Aicardi Goutieres Syndrome?
Learn about AGS Visit agsaa.org
AGS Orientation FAQ
We've a document to help you and your family learn quickly about AGS by answering some frequently asked questions
JAK Inhibition
Learn about the treatment Visit agsaa.org
Donate
Since AGS is incredibly rare and has no government funding, the responsibility is on families to find a cure for our loved ones.
Quick Links for Caregivers
AGS Orientation
Patient Registry
Patient Registry Walk-Through Video
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Shop and support AGS
What is Aicardi Goutieres Syndrome?
Here's a quick 2 minute video to watch and share
What is Aicardi Goutieres Syndrome with Dr. Santoro, Medical Director of Neuroimmunology Program
What is Aicardi Goutieres Syndrome? What treatment is out there?
Have a question for us? Send us a direct message to any of our social media channels. We're here to help!